Hypothyroidism Sucks!

What does being hypothyroid mean?  Sounds like a relatively simple question, doesn’t it?  I mean, if you ask anyone on the street, they just tell you that you’re on medication for life.  Hell, even doctors tell you that.  And that’s pretty much all they tell you too.  But is thyroid disease as simple as that?  Hell to the no!

What does being hypothyroid mean to me?  Simply put, everything.  Having been diagnosed 20+ years now has put some perspective on this, but the last few years have been the most enlightening.  The first few years it meant regular blood tests and obviously daily medication.  I didn’t think much of it for many, many years.  I took my pills, I did regular TSH testing and that really was the sum of all I and more importantly, my doctor did.

Now in all this time, my symptoms really didn’t go away.  I still felt tired, some days more than others.  I still found most things a lot more effort than they should have been to accomplish.  My doctor watched my levels, he’d ask how I felt, I told him, he’d tell me to keep an eye on it and if it got worse, we’d see about upping my medication.  it never got worse per say, but it certainly didn’t get any better either.  For all intents and purposes, I was still hypothyroid due to my symptoms vs having thyroid disease (symptom free with the right medication) and shouldn’t have been.  It wasn’t until I developed additional symptoms that I started doing my own research.

I’m still trying to get my doctor to the same level as I am in regards to more knowledge of this disease and I’ll give him credit, as he has been doing some research on his own and he’s slowly coming along.  But I’m just tired of struggling with fighting not only my symptoms, but to get proper help as well.  I’m tired of the long bouts of insomnia, the development of gallstones, the occasional need to get outside immediately because I feel like I can’t get enough air.  I’m tired of struggling to keep the brain fog at bay.  I’m tired of the months of pain in one (at a time) area that randomly starts up for no apparent reason.  I’m tired of working my ass off in the gym 6 days a week with both cardio and weights, improving my diet (yes, getting my macros right) and it not making a damn bit of difference in my weight.  I’m tired of weighing up how badly certain things need to get done because I am so drop dead tired right to my soul that I don’t even know how I’m still standing and dear lord, do I really need to do that giant pile of laundry or god forbid, take the dog for a walk right this very minute?  *sigh*  Yes, yes you do because it’s not the dogs’ fault you’ve got this pain in the ass disease, not to mention going to work or school naked is generally frowned upon.

I’m a responsible adult dammit but some days I just want to tell the world to fuck right off!  Even if the world were on fire, do not disturb me cause all I want to do is hide under my blankets feigning sleep cause who the freaking hell can sleep when your tired as sin but your body is so screwed up it won’t let you do anything but just lay there staring up at the ceiling?

Who’s bright idea was it to come up with a disease that makes you so tired you can barely keep upright yet as soon as your head hits the pillow it at the same time laughs at you and says “Nope!  Not tonight sweetheart.  Tonight we’re going to toss and turn and never get comfortable and just watch the time crawl by one minute at a time”?  I think we need to hunt that ass down and do unspeakably painful things to him.  Who’s with me?

 

 

 

Copyright © 2012-2017 Sandy Monk/Unleashthehounds blog. All rights reserved. Revised: ALL PICTURES AND CONTENT ON THIS BLOG ~ UNLEASHTHEHOUNDS ~ ARE THE SOLE PROPERTY OF Sandy Monk, and may not be used, copied or reprinted without express permission from the owner. Copyrighted 2012-2017
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Before my Journey was a Journey

As my first post on my thyroid journey attests to, I simply was ignorant to what being hypothyroid meant.  I knew my grandmother had it on my father’s side.  I also knew that meant I’d be on medication for life.  Outside of that I really knew nothing.

But my story goes further back than that.  After my daughter was born, and even during the pregnancy, I gained a lot of weight.  Looking back that should have been a trigger since the first 5 months of pregnancy I couldn’t keep anything down but chocolate milk and oranges.  That was all I ate.  I took my materna vitamins of course, but food in general made me want to hurl just thinking about it.  Between the lack of appetite and the baby depleting my own body’s nutrients, you’d think I’d be losing weight hand over fist.  But no, I was gaining at an extraordinary rate.  So much so, my doctor became quite anxious about it.

Now here’s the thing.  Just about every woman that gets pregnant has thyroid issues during and approximately 12 months after.  Once the hormones regulate, the thyroid included, all is good.  Except for 20% of us.  Nope.  For us, the thyroid stays f*%@d up.

Now couple that with the knowledge that one of the significant signs of being hypothyroid is significant weight gain over a relatively short amount of time and the inability to lose it.

So why is it no one thought to check my thyroid?  They checked me for Diabetes and various other things, but not once did TSH come up in conversation nor on the blood tests to be done.  Yes I’m aware it’s easier to look back but still, I expect doctors to know more than I do.  That’s literally why they get paid the big bucks and I’m left waiting for my appointment for 3 hours.   Their time is precious, ours is not.

Dry skin.  OMG, dry skin.  For me it is especially along the hair line and scalp.  Speaking of hair, mine turned dry and dull and no amount of moisturizing did the job.  It was awful.  And being blonde, it looked and felt like straw.

I have spoken of the mood swings.  Ah yes.  Insomnia.  Welcome to never sleeping well again.  And seeing as you are already tired as hell all the damn time, no sleep helps with that soooo much.
Wait for it!  If you thought that was bad, wait until you get brain fog.  That’s when you couldn’t hold a coherent thought in your head for more than just a few seconds without losing it in that mental abyss forever.  I have become the post it queen!  I write things down everywhere.  I find them later and have no idea what the significance of it is, but I have it written down.  Lol!  Memory, or lack of rather.  I used to have a mind like a steel trap.  I could remember details for my job that had my bosses astounded at times.  Now I’m lucky if I remember to put on underwear.  Ok.  That’s a slight exaggeration, but you get where I’m coming from.  Again.  Queen of the post it notes.  They become your savior and nemesis all rolled into one little sticky package.  I hate them but I know I need them.

My nails grew brittle and hard.  They’d break just looking at opening a pop can or the like.

I grew restless.  Truly relaxing was a fantasy.

I developed joint aches.

I started to snore and heavily.

Oh, and gallbladder pain.  I developed gallstones and although I am still doing research on that, what I’ve read points to this too stemming from my out of whack thyroid.

Heart palpitations.  That was a little freaky.  I think most of us will tolerate a little unusual something going on in different areas, but the heart isn’t one of them.

I’m not sure these are all the symptoms I had, but they are the ones that stood out in my mind the most.  Seeing as this was 20 years ago too.  Mind you, some I’ve simply never lost, they just improved substantially.  I’ve also gained some or they’ve significantly worsened over the last couple of years.

Again, my symptoms worsening or new and improved ones, from my research so far at this point tells me that this is because of the Synthroid.  And I know for sure the “Air Hunger” or dyspnea is CAUSED by my medication.  Now that was just wonderful news.

But there is a light at the end of the tunnel.  Synthroid is NOT the only medication available.  In fact, NDT or natural desiccated thyroid is out there.  It is regulated and has been around for much longer than Synthroid.  PLUS, it isn’t just T4.  Since it is a natural substance, it has all the hormones present.

Again, my recommendation is research, research, research.  Find out what is best for YOU.  Your body, and mind, will thank you for it.

 

 

Copyright © 2012-2015 Sandy Monk/Unleashthehounds blog. All rights reserved. Revised: ALL PICTURES AND CONTENT ON THIS BLOG ~ UNLEASHTHEHOUNDS ~ ARE THE SOLE PROPERTY OF Sandy Monk and may not be used, copied or reprinted without express permission from the owner. Copyrighted 2012-2015